Results of 1997 Post-Polio Syndrome Survey of the
Central Virginia Post-Polio Support Group
By: Henry Holland, M.D.

PPSC DISCLAIMER

In July 1999 Dr. Holland refered to and posted results of a 1997 Survey
of the Central Virginia Post-Polio Support Group to the POLIO email list. With his kind permission, excerpts from his post, including all of the survey data are below:

"Sixty-one members of our PPSG completed the surveys that were mailed to the membership in October 1997. I appreciate the time and mental energy that these sixty-one individuals expended to complete this review. Forty-five women and sixteen men completed surveys. Following are some demographic results."

~ INDEX ~
Use your BACK button to come back here

Alleged Source of Infection - Assistive Devices Used During Years of Maximum Functioning
Average Age of Contracting Acute Polio & Range - Best & Worst Times of Day - Children - Cognition Problems
Education - Emotional Symptoms - Employment/Disability - Family Impact - First Symptoms of PPS - Hormones
Hypertension - Initial damage Following Acute Polio - Lengths of Initial Hospital Stay
Location at Time of Original Polio - Marital Status - Most Effective Treatment For PPS - Motor Weakness
Numbers Participating & Range of Age - Other Medical Problems - Occupations - Optional Data - Pain
Place of Treatment For Acute Polio - Rural or Urban Location - Severity of PPS - Sleep Disturbance
Support Groups - "Type A" Personality - Types of Physicians Making Diagnosis of PPS - Urogenital Problems
Various Treatments For PPS - Visible Evidence of Polio During Maximum Years of Functioning
Year That Individual Felt PPS Began - Years of Maximum Function After Polio

Average age of PPSers:   59 Years Old
Range of age:   38 to 82 Years Old
MARITAL STATUS
  NUMBER PER CENT
Married 43 70.5 %
Divorced 5 8.1 %
Widowed 6 10.0 %
Single 5 8.1 %
Marital Status Unknown 2 3.3 %
CHILDREN
Average Number of Children 2
Range: 0 to 5
Number With at Least One Child 49   /   80%
OCCUPATIONS
Homemaker   12
Business / Accounting   12
Teacher / Education   9
Secretary   7
Medically Related  6
   Variety of Other Occupations: lawyer, engineer, draftsman, artist, entertainer, mechanic, plumber, interior design, heavy equipment operator, parole officer
EDUCATION
  NUMBER PERCENT
Less Than High School 3 4.9%
High School Grad 10 16.4%
Some College 17 27.9%
College Grad 13 21.3%
College Grad Plus 2 3.3%
Graduate Degree or Higher 16 26.2%
College Education or Higher 31 51%
Average Age of Contracting Acute Polio:   8 Years Old
Range of Age:   2 Months to 27 Years
LOCATION AT TIME OF ORIGINAL POLIO
STATE OR COUNTRY NUMBER
Virginia 32
    Richmond     10
    Norfolk     4
North Carolina 5
Washington D.C., Florida, Connecticut, New York, California, and Pennsylvania 2 each
Nebraska, Kentucky, Indiana, South Carolina, Massachusetts, West Virginia, Zaire, Ontario, Canada, Germany, and the Philippines 1 each
RURAL / URBAN
  NUMBER PERCENT
Urban Location 29 47.6 %
Rural Location 16 26.2 %
Small town location [<25,000] 16 26.2 %
ALLEGED SOURCE OF INFECTION
SOURCE NUMBER PERCENT
Unknown 22 36.1 %
Social Contact 15 25 %
Water 12 19.7 %
Medical Center 7 11 %
Epidemic in Locality 5 8.2 %
PLACE OF TREATMENT FOR ACCUTE POLIO
PLACE NUMBER PERCENT
 MCV 16 26.2 %
 DePaul 4 6.6 %
 D.C. Children's 3 4.9 %
 Medical Center 7 11 %
 Other Hospitals 26 42.6 %
 Home or Out-Patient 6 9.8 %
 Unknown 6 9.8 %
 Total Hospitalized 49 80.3 %
LENGTHS OF INITIAL HOSPITAL STAY: [in months]
1 2 3 4 5 6 7 8 9 10 11 12
3 5 6 5 2 4 3 2 4 11 1 -
INITIAL DAMAGE FOLLOWING ACUTE POLIO
Feet One Leg Waist Down Waist Down
One Side
Neck Down Neck Down
One Side
I. Lung
One Side
2
9
9
2
17
11
9
NUMBER OF YEARS OF MAXIMUM FUNCTION AFTER POLIO
10 to 20
20 to 30
30 to 40
40-50
11
19
21
8
ASSISTIVE DEVICES USED DURING YEARS OF MAXIMUM FUNCTIONING
None
Sp.Shoes
Crutches
Cane(s)
One Brace
Braces
Braces & WC
Wheelchair
23
6
3
2
14
1
6
5
VISIBLE EVIDENCE OF POLIO DURING MAXIMUM YEARS OF FUNCTIONING
Limp or Atroph.
Arm Atrop.
Limp/Atrop.& Sp.Curve
Orth. Device
Spinal Curve
Sp.Curve & Orth. Devices
Balance
Voice
24
1
14
4
3
5
1
1
YEAR THAT INDIVIDUAL FELT PPS BEGAN
< 1970
1970-74
1975-79
1980-84
1985-89
1990-84
1995 -
4
0
7
14
23
8
2
FIRST SYMPTOMS OF PPS [ M=Motor Loss F=Fatigue P=Pain ]
M
F
P
MF
MP
MFP
Breathing
Swallowing
19
4
1
17
3
11
1
2
TYPES OF PHYSICIANS MAKING DIAGNOSIS OF PPS
PM&R
Neurology
Orthopedic
Family Pr.
Int.Med.
ENT
27
8
5
1
2
1
SEVERITY OF PPS
Severe
Moderate
Mild
23
31
2
OTHER MEDICAL PROBLEMS
Other Medical Problems
No Other Medical Problems
44
16
VARIOUS TREATMENTS
Rx
Vitamins
PT
OTC
Massage
Herbs
Exercise
Chiro
Water
Alcohol
25
29
5
8
5
3
8
1
11
2
MOST EFFECTIVE TREATMENT FOR PPS
Pacing
Exercise.
Massage
PT
Rest
Water
Meds
Faith
Wine
Couns
None
3
4
3
4
6
12
13
1
1
1
6
HYPERTENSION
Number With Hypertension: 22 or 36% (all 22 are being treated)
HORMONES
Number Receiving Hormones: 27 or 44%
  TYPES OF HORMONES:
Female Hormones
Steroid
Testosterone
DHEA
23
1
1
2
SLEEP DISTURBANCE
Number With Sleep Disturbance: 32 or 52.5%
   TREATMENTS: TCAs=Tri-Cyclic Antidepressants
TCAs SSRIs TyPM Trazodone Hydroxy Herbs Benzos
1
2
4
2
1
2
7
Analg Melatonin  
1
1
 
   REPORTED CAUSES FOR SLEEP DISTURBANCE
Interrupted Initiating Restless Stress Breathing Nocturia Nightmares
13
6
2
1
2
1
1
UROGENITAL PROBLEMS
Number With Urogenital Problems 36 or 59%
   TYPES OF UROGENITAL PROBLEMS:
Incontinence
Impotency
Frequency
Nocturia
UTI
15
7
15
9
7
COGNITION PROBLEMS
Number Reporting Cognition Problems 44 or 72%
   TYPES OF COGNITION PROBLEMS: [ CONC. & CON=Concentration ]
Word Find
Memory
Conc.
Con./Mem.
Word/Con
Word/Mem
W/M/C
Old Age
17
7
2
4
1
3
7
3 ?
PAIN
Number With New Pain Associated With PPS: 49 or 80% Treatments Varied
EMOTIONAL SYMPTOMS
Number Reporting Anxiety,Depressed Mood or Other Emotional Symptoms: 32 or 52%
   TREATMEMTS:
Meds
Talking
Activity
Prayer
Rest
Counseling
11
6
2
4
3
2
MOTOR WEAKNESS
Number with New Motor Weakness With PPS: 55 or 90%
"TYPE A" PERSONALITY
Definition of "Type A" Personality Used For Survey
Number Reporting So Called
"Type A" Personality
Number Denied "Type A"
Somewhat
No Answer
46 or 75%
6 or 10%
2 or 3%
7 or 12%
FAMILY IMPACT
Number Reporting PPS Having Some Impact on Family: 31 or 51%
   TYPES OF IMPACT:
On Spouse
On Children
Denial
Burden
Lazy
Family Helpful
Divorce
8
1
3
1
1
7
1
BEST & WORST TIMES OF DAY FOR PPSERS
   What is The Best Time of Day For PPSers?:
Morning
Late Morning
Midday
Afternoon
Late Afternoon
Evening
25
4
11
8
8
5
   What is The Worst Time of Day For PPSers?:
Morning
Late Morning
Midday
Afternoon
Late Afternoon
Evening
17
0
2
8
17
11
EMPLOYMENT/DISABILITY
Number Working Full Time 11 (6 over 40hrs/wk) or 18%
Number Working Part Time 6 (Range: 5 to 30 hrs/wk) or 10%
Number Disabled From Working 25 or 41%
Number Receiving SSDI 17 (plus 2 that were getting before SS)or 28%
Number Receiving Private Disability Benefits 7 or 12%
SUPPORT GROUPS
Number Attending at Least 1 Meeting in Last Year 28 or 46% (3 to Other Groups)
Number Preferring Our Current Meeting Time 39 or 64%
   TIME OF DAY PREFERRED:
Morning
Noon
2PM
4PM
Anytime
7
2
20
1
3
   OTHER DAYS REQUESTED FOR MEETINGS:
Sunday
Wednesday
Thursday
 
 
3
3
1
 
 
   NUMBER DESIRING MORE SOCIAL EVENTS:
Yes
No
 
 
 
14
21
 
 
 
   TYPES OF SOCIAL EVENTS SUGGESTED:
Picnic
Meals
Trip
 
 
7
7
1
 
 
   TYPES OF MEETINGS PREFERRED:
Outside Sp
Lg Group Inf
Lg Group Foc
Sm Group Inf
Sm Group Foc
15
9
3
5
8
Number Unable to Attend Meetings 13 or 21%
Number (physically unable) Who Would Come if Transportation Were Provided 6 (3 of these can drive, but would need assistance getting from car to meeting room)
Number (Physically Able) Who Would Come if Transportation Provided 13
OPTIONAL DATA
Number Providing Names 58
Number Providing Phone Numbers 56
Number Providing Race 56
   BREAKDOWN BY RACE:
White
African American
Native American
55
1
1
Number Providing Religion 57
   BREAKDOWN BY RELIGION:
Christian
Jewish
Other
53
1
1

Dr. Holland Described the term "Type A Personality" used for this survey. Follows is that explaination:

"While I am on a roll, I also noticed the comments that have been made about the so called Type A personality. The term Type A personality is not a diagnostic entity. It is a popular term that originated from a description of the alleged types of individuals who were at high risk for coronary artery disease. The typical Type A description is alleged to be an individual who is rather controlling in his/her behavior, especially in relation to other people. This individual tends to be highly motivated to achieve goals, is somewhat obsessive compulsive in personality type, is usually a workaholic, finds it difficult to relax, and tends to have an edge of irritability when under stress which is often self imposed. Many of us may fit this description; although I have found that many PPSers are caring, perceptive, and have considerable wit and humor. For whatever it is worth, I did a survey within my own support group and one of the questions had to do with the so called Type A personality. The survey included a definition of a Type A personality similar to the one offered above."
Back to Type A part of Survey

Dr. Holland is an active member of:
The Central Virginia Post-Polio Support Group

Post-Polio Syndrome Central
Post-Polio Syndrome Related Internet Info and Support Resources
Search PPS-C
Contact PPS-C
Privacy Statement
What's New
Add URL
PPS-C Home
PPS Calendar
About PPS-C
PPMed Email List

Links verified 1 November 2016
Please note: links outside of the main database are archival in nature and may be invalid.

All Materials on this Site are copyrighted and protected by worldwide copyright laws and treaty provisions. Any unauthorized use of the Materials may violate copyright laws, the laws of privacy and publicity, and civil and criminal statutes. Violators may be prosecuted.